Dataset from Zenodo · Lauren Maxwell
Platforms & registries for sharing participant-level COVID-19 data
- License
- CC BY 4.0commercial use allowedLicense text
- This license allows commercial use. Usually you must credit the author; read the license for the exact terms.
- Formats
- XLSX
- Size
- 1.3 MB
- Updated
- Mar 31, 2023
Description
This dataset presents an overview of platforms and registries that store, harmonize, and, in some cases, share COVID-19-related participant-level data, including clinical-epidemiological, human and pathogen OMICs, and high dimensional imaging data. The dataset provides an in-depth review of adherence to the FAIR principles , governance, benefit sharing and other ethical concerns related to resources that share harmonized, participant-level data for the research response to COVID-19. Systematic searches were conducted between April 2020 and June 2021 to identify relevant platforms and registries. We applied natural language processing to the CORD-19 dataset in March of 2021 and consulted with COVID-19 focused researchers in Asia, Africa, and Latin America to identify non-English language COVID-19-related data sharing resources.
Description from Zenodo, shortened.
Files (3)
- XLSXCOVID-19 Participant-level data sharing platforms & registries_v2.xlsx456 kB
- XLSXCOVID-19 Participant-level data sharing platforms & registries_v1.xlsx423 kB
- XLSXCOVID-19 Participant-level data sharing platforms & registries_v3.xlsx462 kB
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