Dataset from Zenodo · Lauren Maxwell

Platforms & registries for sharing participant-level COVID-19 data

License
CC BY 4.0commercial use allowedLicense text
This license allows commercial use. Usually you must credit the author; read the license for the exact terms.
Formats
XLSX
Size
1.3 MB
Updated
Mar 31, 2023

Description

This dataset presents an overview of platforms and registries that store, harmonize, and, in some cases, share COVID-19-related participant-level data, including clinical-epidemiological, human and pathogen OMICs, and high dimensional imaging data. The dataset provides an in-depth review of adherence to the FAIR principles , governance, benefit sharing and other ethical concerns related to resources that share harmonized, participant-level data for the research response to COVID-19. Systematic searches were conducted between April 2020 and June 2021 to identify relevant platforms and registries. We applied natural language processing to the CORD-19 dataset in March of 2021 and consulted with COVID-19 focused researchers in Asia, Africa, and Latin America to identify non-English language COVID-19-related data sharing resources.

Description from Zenodo, shortened.

Files (3)

  • XLSXCOVID-19 Participant-level data sharing platforms & registries_v2.xlsx456 kB
  • XLSXCOVID-19 Participant-level data sharing platforms & registries_v1.xlsx423 kB
  • XLSXCOVID-19 Participant-level data sharing platforms & registries_v3.xlsx462 kB

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